Neonatal Intensive Care Unit (NICU)

Data Definition: Comment to capture details not identified in other data elements.

Data Definition: Indication whether there were suspected or confirmed newborn congenital anomalies

Data Definition: Identify all suspected congenital anomalies. If a suspected congenital anomaly is later confirmed as not present, it should remain as suspected. Then None or any other confirmed anomalies should be entered in Congenital Anomalies Confirmed.

Data Definition: Identify all confirmed/diagnosed congenital anomalies; include treated and untreated.

Data Definition: Enter the date infant received one or more transfusion of packed red blood cells in your unit. If multiple transfusions occurred over different days, enter the date of the latest transfusion.

Data Definition: Enter the time infant received one or more transfusions of packed red blood cells in your unit. If multiple transfusions occurred, enter the time of the latest transfusion.

Data Definition: Select "yes" if one or more Retinopathy of Prematurity (ROP) screenings has been performed in your hospital. Select "no" if not performed.

Data Definition: Select "yes" if infant meets Respiratory Syncytial Virus (RSV) prophylaxis criteria (see Ministry of Health definitions of criteria). Select "no" if infant does not.

Data Definition: Select the name of the facility (outside your hospital) where the infant was transferred from.

Data Definition: Date of admission to your unit. This may be different than date of birth for late admissions or out-born infants.

Data Definition: Enter time of admission to your unit.

Data Definition: Infant’s date of discharge/transfer from your unit.

Data Definition: Infant's time of discharge/transfer from your unit.

Data Definition: Does the infant meet your hospital's criteria to be referred to a neonatal follow-up clinic?

Data Definition: Enter infant's head circumference in centimeters on discharge from your unit to home, other hospital, etc.

Data Definition: Head Circumference on Discharge from NICU Is Unknown

Data Definition: Indicate the disease process(es) or condition(s) diagnosed in your unit.

Data Definition: The GA on admission to NICU

Data Definition: Any surgical intervention that took place during this stay in your unit.

Data Definition: The name of the facility (outside your hospital) where the infant was transferred.

Data Definition: Indicate results of venous umbilical cord blood sampling indicating base excess or deficit reported by birth hospital.

Data Definition: Indicate results of venous umbilical cord blood pH as reported by birth hospital. If results include '<' enter the next lowest value to one decimal place.

Data Definition: Results of arterial umbilical cord blood sampling indicating base excess or deficit as reported by birth hospital.

Data Definition: Results of arterial umbilical cord blood pH as reported by birth hospital.

Data Definition: Location where the birth occurred (hospital, home, other, etc.).

Data Definition: Time of Birth Unknown

Data Definition: APGAR Score at 1 minute of age. Includes five components: Appearance (color), Pulse (heart rate), Grimace (reflexes), Activity (muscle tone), and Respiration (breathing), each given a score of 0, 1, or 2 (total score of 0-10).

Data Definition: APGAR Score at 5 minutes of age. Includes five components: Appearance (color), Pulse (heart rate), Grimace (reflexes), Activity (muscle tone), and Respiration (breathing), each given a score of 0, 1, or 2 (total score of 0-10).

Data Definition: APGAR Score at 10 minutes of age. A 10 minute Apgar is usually only done if the 5 minute score is less than 5. Includes five components: Appearance (color), Pulse (heart rate), Grimace (reflexes), Activity (muscle tone), and Respiration (breathing), each given a score of 0, 1, or 2 (total score of 0-10).

Data Definition: Infant birth weight (grams).

Data Definition: Infant birth weight is not known.

Data Definition: Infant's gestational age at the time of birth calculated using "Estimated Date of Birth" and "Newborn Date of Birth" data elements in weeks and days.

Data Definition: Multi select. Include all methods of feeding the infant is receiving within 24 hours of discharge to home or other unit/facility

Data Definition: All complications and/or conditions noted at the time of birth of the infant.

Data Definition: All methods of resuscitation provided at the delivery within the first 30 min of life only.

Data Definition: The result of the Auditory Brainstem Response (ABR) or Distortion Product Otoacoustic Emission (DPOAE) newborn hearing screen test done during the hospital stay

Data Definition: Indicate whether newborn drug screening done and if so, select type

Data Definition: Indicate result of newborn drug screening

Data Definition: Neonatal therapies or interventions include any treatment or procedure provided to an infant including medications and respiratory support, during this admission to your unit.

Data Definition: Indicate the total number of calendar days the neonate received Non Invasive Ventilation, (e.g. NCPAP, SiPAP) in your NICU for this admission only in whole numbers. For example, if the neonate received non-invasive ventilation for four hours on Day 1 indicate Non-Invasive Ventilation Days = 1. If the neonate received non-invasive ventilation for four hours on Day 1 and four hours on Day 2, indicate Non-Invasive Ventilation Days = 2.

Data Definition: Indicate the total number of calendar days the neonate received Invasive Ventilation in your NICU for this admission only in whole numbers. For example, if the neonate received invasive ventilation for four hours on Day 1 indicate Invasive Ventilation Days = 1. If the neonate received invasive ventilation for four hours on Day 1 and four hours on Day 2, indicate Invasive Ventilation Days = 2.

Data Definition: Indicate the total number of calendar days the neonate received respiratory support that involved oxygen therapy greater than 21% (room air) in your NICU, for this admission. Represented in whole numbers. For example, if the neonate received oxygen therapy for four hours on Day 1 indicate Oxygen Therapy Days = 1. If the neonate received oxygen therapy for four hours on Day 1 and four hours on Day 2, indicate Oxygen Therapy Days = 2.

Data Definition: Calculated gestational age of premature infant at discharge from hospital

Data Definition: Age of newborn in days upon discharge from NICU

Data Definition: Indicate baby weight at discharge (grams). Enter 0 if weight is unknown.

Data Definition: Discharge Weight (NICU) Is Unknown

Data Definition: Indicate if parents or guardian have consented to autopsy in the case of neonatal death.

Data Definition: Indication of whether or not neonatal death occurred. While neonatal death technically only includes the first 28 days of life, includes infant death that occurs after that period, while in your care.

Data Definition: Location infant was transferred or Discharged to from your unit

Data Definition: Provide the location where the infant was admitted from to your unit.

Data Definition: Indicates whether breastfeeding education and/or support was provided from the time of birth to discharge from hospital OR for midwifery clients, from time of birth to discharge from midwifery care.”. *Note: for NICU encounter this applies only to the duration of the NICU admission. For the PPM encounter this applies only to the duration from birth to discharge from care.

Data Definition: Most women need information and/or support to establish breastfeeding after birth and prior to discharge from hospital OR for midwifery clients, from time of birth to discharge from midwifery care. Select the type(s) of support provided.

Data Definition: Select reason why breastfeeding education and support was not provided from the time of birth and prior to discharge from the hospital

Data Definition: Calculation of newborn percentage of weight loss/gain at the time of discharge

Data Definition: Select all health care providers who were responsible for and carried out the transport of an infant from your unit to another facility.

Data Definition: Day/month/year of neonatal death.

Data Definition: Time (24 hour clock) of neonatal death.

Data Definition: Calculated Age at Neonatal Death

Data Definition: Indicate if Bilirubin was measured within 72 hours of birth. If TCB and TSB were used, select both. If baby is discharged from hospital and returns for testing within 72 hours, select “No – Newborn Transferred Out/Discharged”

Data Definition: Indicate whether hyperbilirubinemia required treatment

Data Definition: Multi select. Indicate all methods of treatment the infant received for hyperbilirubinemia in your unit.

Data Definition: Indicate whether highest serum bilirubin > 340 µmol/L

Data Definition: Indicate whether highest serum bilirubin > 425 µmol/L

Data Definition: Defined level of care under PCMCH designation (auto populates)

Data Definition: Enter infant's measured head circumfernce in centimeters on admission to your unit. This can be the first known head circumference in your unit.

Data Definition: Admission Head Circumference (NICU) Is Unknown

Data Definition: Enter the body weight in grams of infant on admission to your unit no matter where infant was admitted from. If no weight is taken in the 24 hours following admission enter estimated weight on which treatment is based.

Data Definition: Age of the newborn in days upon admission to NICU

Data Definition: Admission Weight (NICU) Is Unknown

Data Definition: Select all health care providers who were responsible for and carried out the transport of an infant to your unit from another facility.

Data Definition: The percentage of oxygen (21%-100%) used INITIALLY for resuscitation in the first 30 min of life only.

Data Definition: Enter the maximum concentration of oxygen (>21%) used during resuscitation of an infant in the first 30 minutes of life. Values should be 22-100%. An O2 value of 21% is considered room air.

Data Definition: Select if it is unknown what the maximum amount of oxygen the infant was in during resuscitation in the first 30 minutes of life.

Data Definition: Multi select. Include all methods of pain management provided to infant in your unit.

Data Definition: Select one value (highest mode) by this order • Invasive High Frequency Ventilation [1-highest] • Intermittent Positive Pressure Ventilation [2] • Non-Invasive Ventilation [3] • Oxygen [4] • Other [5-lowest] • None • Unknown

Data Definition: Select all methods of respiratory support provided during this admission in your unit.

Data Definition: Select all methods by which an infant was fed during their stay in your unit.

Data Definition: Select the types of feeding that an infant recieved during their stay in your unit.

Data Definition: Multi select. Provide all reasons infant received any feeding other than breast milk while in your unit.

Data Definition: Choose the method used to assess for retinopathy of prematurity (ROP).

Data Definition: Indicate the worst level of eye disease by stages 1 through 5.

Data Definition: Indicate the worst level of eye disease by stages 1 through 5.

Data Definition: Choose the method used to treat retinopathy of prematurity (ROP).

Data Definition: RSV Prophylaxis Criteria - See list from the Ministry of Health and Long Term Care (MOHLTC) criteria that describes which infants are eligible for Synagis Prohylaxis for Respiratroy Syncytial Virus (RSV). Select the appropriate criteria from the pick list.

Data Definition: Select "yes" if Syngagis has been administered in your unit. Select "no" if not administered.

Data Definition: Select if any neuroimaging was performed during the infant's stay in your unit.

Data Definition: Results of head ultrasound or CT scan done in your unit for the left side of the brain.

Data Definition: Results of head ultrasound or CT scan done in your unit for the right side of the brain.

Data Definition: Multi select. Select all types of feeding within 24 hours of discharge to home or other unit/facility.

Data Definition: Muti select. Select all interventions infant is receiving on discharge to home or another unit/hospital.

Data Definition: Enter the body temperature in celcius of infant on admission to your unit no matter where infant was admitted from. Use axillary or rectal, but not skin probe temperature (temperature of the baby using the incubator/warmer). If unknown, enter as '0'.

Data Definition: Admission Temperature Is Unknown

Data Definition: Indicate whether or not there is evidence that consent for use of breast milk substitute was obtained from the parent. Consent can be in verbal or written form.

Data Definition: Indicates if blood glucose monitoring via bedside monitoring (point-of-care) and/or laboratory analysis was being done according to the Canadian Pediatric Society's guidelines.

Data Definition: Indicates if oral dextrose/gel was given to the infant for the purposes of stabilizing blood sugars.

Data Definition: Indicates the ABO blood group and the presence (+) or absence (-) of the Rh factor of the newborn/infant's blood (results can be obtained from baby or cord).

Data Definition: Indicates common and broad categories of reasons why the infant was admitted to the NICU.

Data Definition: Length of time in hours and minutes the infant received oxygen therapy (greater than 21% or room air) within the NICU.

Data Definition: Length of time in hours and minutes the infant received non-invasive ventilation within the NICU. This includes CPAP, bubble CPAP, BiPAP (biphasic positive airway pressure), SiPAP (sigh-positive airway pressure), NIPPV (Non Invasive Positive pressure ventilation), HFNC (High Flow nasal cannula), and SNIPPV (synchronized nasal intermittent positive pressure ventilation).

Data Definition: Length of time in hours and minutes the infant received invasive ventilation within the NICU. This includes all forms of mechanical ventilation with endotracheal tube or tracheostomy tube (including high frequency ventilation - HFV), as well as NAVA (Neurally Adjusted Ventilatory Assist).

Data Definition: All reasons why the infant was transferred to the NICU.

Data Definition: NICU Admission Flag is calculated in the APP DB based on enconter data. Value is stored in the Application Birth Aggregated record and then promoted to Reporting DB.

Data Definition: Status of umbilical arterial cord blood test.

Data Definition: Status of umbilical venous cord blood test.

Data Definition: The name of the hospital where the birth occurred if Birth Location =hospital. Includes all Ontario hospitals with and without birthing units and some out of province and out of country hospitals.